Wednesday, November 19, 2014

It really is unbelievable. I mean, I can believe it but statistically, Damon and I should be divorced by now. The divorce rate is 85% among couples with a special needs child. We have fought for our marriage and kept Christ as the center of it. Our marraige isn't without faults, stress, or heartache and we aren't perfect people. I am proud of our marriage and the life we have created for our children. 11/19/94!
I love you Damon!

It was amazing to be here. To be a part of a church that WANTS the unwanted. Jesus. Others. Yourself. The JOY Prom was unbelievable tonight. A night of fellowship and fun for hours. A night when our handicapped daughter can be a part of something normal. Every where I turned, I was asked what could be done for me. I was humbled to tears. Dave Moen and his team went ABOVE and BEYOND this year and it was PHENOMINAL. We, as a family, had a wonderful time. Thank you Beach Church.

Jack took this right before we left the prom. Lizzy was so tired!!

Our church printed up brochures for our Beach Buddies Program. 
They came out B-E-A-U-T-I-F-U-L!!!

Wednesday, September 24, 2014

This Hurts

This one tore me up. Bad. Lizzy turning 15 made me so sad. Damon too. He teaches kids her age and I work at a driving school that teaches this age group how to drive. It has kept a lump in my throat and the tears in my eyes. 

I almost didn't get her anything. She would never know. But, I went to the toy store and got her toys that make her happy. Baby toys. I had trouble while in the store. Damon found me holding her toys just staring at a shelf of other toys. I couldn't help it. I started to cry. I don't want to buy my 15 year old baby toys. I want to take her to get a learners permit. I want to watch her play a sport. I want to take her shopping. I want. I just want. 

But I hold on to a promise. It keeps me going. That if I just believe, I WILL see the glory of God. John 11:40. 

I do better if I can look forward to something. So I'll just keep believing.

Happy Birthday!!!

You are 15 today, my sweet Lizzygirl. I love you. I know you may not know that your birthday is today but I know you know that I love you. And that makes me happy. 

Happy Birthday Zee Zee.

Wednesday, May 21, 2014

A Text From Mom

I have to tell you. .. .
I just experienced a worship service that might top all. Not a word or sound was made.  I put Liz to bed. I prayed with her as usual. I looked up. She turned on her back, looked up smiled in a beautiful huge dimpled smile. Then she slowly looked in every direction. Slowly turning from side to side and up and down smiling all the time. She laughed and reached out toward ceiling, got up on her elbows, reached for me, hugged me, laid back down and continued to look around smiling.
I'll tell you there were angels in every direction. They were everywhere. I felt like I truly was kneeling on Holy ground.

Just wanted to share that. Thanks for letting her spend the night.

Thursday, January 9, 2014


So here we go again. That year went by so fast!!! Resolutions. Resolutions. I can come up with 50!

  1. keep more wipes on hand while changing the "fun" diapers.
  2. spot clean the carpet each time instead of spraying febreeze on Lizzy's room.
  3. delete photos from photo stream where Lizzy looks "crazy" or it's blurry
  4. bring Lizzy out more with us
  5. eat healthier
Blah, blah, blah.........I get excited for a new year but dread making any resolutions. I feel like I HAVE to make these resolutions permanent for the rest of my life. Dang. That is why I hate making promises. I am seriously not a yes person. If I say yes, something could come up, and I look like someone that can't make a decision. So if I say maybe or it's possible, then I have an out if I need it. Sounds good right? Eh......

I have a lot of expectations for 2014. I want to accomplish a lot. My marriage will have it's 20th birthday:-) I love my Damon more than EVER. The stress of having a child with cerebral palsy brings so much stress but seems minimal with a partner that WANTS to be there and gives genuine effort. He is the kind of dad that wants family outings to be with everybody. So bringing Lizzy out seems stressful but with him there too, it's manageable. My number one promise to Lizzy and my resolution for 2014 is.................

to include this child in all (or most) of our family outings. I realize that I just gave myself an out!! I couldn't help it.

Isn't she beautiful? Most of the time, she is happy and smiling. But then, there are those times when she isn't like this and I need to bail! in "is this really worth it?" I know YOU know what I am talking about. Let's just take a family dinner at a nice, sit down restaurant. I generally feed Lizzy before going anywhere. So we will bring toys and other items that will make her comfortable. So ten minutes in to us being there a fork will hit a plate or dishes will fall in the kitchen...........LOOK OUT........we immediately look to Lizzy and it has scared her into a seizure! We are a family that would rather not have any attention on us so this makes us uncomfortable now because all eyes are on us. I want to bounce...get out of there. I immediately throw toys in the bag and Damon will say, "babe, relax, she'll be fine in a minute." 

I mean, I go into a night like that wanting to take two vehicles and expecting to leave early. But, he is right. With in minutes, she is back to herself.

I have never been embarrassed of Lizzy but would never want to make anyone uncomfortable and seeing a child have a seizure is just that.  Everyone feels helpless. But having seizures isn't the only thing that makes me want to scadaddle. She throws toys, squeals, cries, and screams. I have apologized to others having dinner near us for a toys that ended up on their table or for a loud(er) evening than they wanted. I'm sensitive and always have been. I don't like pushing Lizzy on anyone or her condition.

I love Lizzy so much and want her included. She is our first born and part of our beautiful family.

So.....if you see us out, or anyone with a disability, have mercy on us. We like to be out just as much as you do trying to do normal things too. Be tolerant. Be accepting. Be loving and smile at us. We probably need it.

Happy New Year and God Bless You!!!

Hanging at Target!! Listening to kids music. 

To 2014!!!!! Be safe.


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