Random

Well, it happened. Mom and I had a fight this morning. We had to check out of one room and move to another. Here is how the heated conversation went.

Mom: Lisa, I will pack the room up while you and Lizzy dive this morning. 

Lisa: no.

Mom: well, why not. I can do it.

Lisa: because, I am not going to let my mother in law pack up the entire room without my help.

Mom: When did I become your mother in law, I've been Thelma all week!

I about died on the floor laughing. Later, mom explained herself. See, Thelma and Louise were partners.....in crime. But partners, nonetheless. Mom has been great. Helped with the feedings, changing diapers, bathing, getting Lizzy in and out of the van, weight watchers partner, and some dives. So I understood her "Thelma" comment. 

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We met a family yesterday morning while eating breakfast. They approached us quietly (which I understood why within minutes). They lost their 19 year old daughter in April. Her name was Rebecca. Rebecca had Retts syndrome and died from complications of having it. She was non verbal, visually disabled, had seizures, and basically was cared for 24/7. They approached us quietly as not to scare Lizzy. You could see in their eyes, they understood everything.

I thought about this family most of the day. I was sad for them to have lost their child but  was happy that they had almost 20 years with her. Lizzy has a diagnosis of microcephaly. Most of the research says that people with it have a shorter life span. Having been on internet support groups, I did not find too many kids over 10 years old and it scared me. I want more time with Lizzy. She is becoming a different girl than she was three weeks ago. She focuses more, babbles more, walks upright more, and just seems like she is loving life right now.

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Thanks to a friend who bought this for her special needs son, I found Lizzy's new favorite toy! It is the LeapFrog music wand.

We will finish out the week with dives 29 and 30 tomorrow and go back to the beach. I love having mom here with me, but I do miss my awesome husband and kids. I respect anyone who spends long periods of time away from their spouse. I think Lizzy is more aware of where she is. She growls every time we come back into the hotel room. Right now, she is in her bed talking and grunting. When I say talking, I mean babbling.

If you needs a clean place to stay while in Hilton Head. You really should stay at this Hampton Inn. It has a wonderful breakfast every morning. The staff is so friendly and helpful. The beds are the most comfortable for a hotel and it is reasonably priced. It has been a wonderful place to stay. 

I have enjoyed your prayers for Lizzy and each one has been read. I will print them as soon as I get home. I hope you will be willing to do me another favor. I understand some of you may not be able to do this and I apologize. If Lizzy has touched you in some way or you have a personal memory of Lizzy, could you share it with us? I would love to use them in a future blog post. I would appreciate that and thanks!

Thank you for reading our little blog that has crept up to over 2,000 visitors. I have a friend (Amy:-}) reading in Ireland! We went international, folks! 

Oh...and mom and I are friends again:-)

 God bless. Have a great night!